A wonderful man I met through the Conneticut Parkinson's Support Group and working as a massage therapist and energy practioner wrote a book of poems that has touched me deeply. Each poem is a direct reflection - almost a journal - of his experiences since diagnosed with Parkinson's Disease. This book is what I imagine to be the most accurate depiction of what it is like to live with this disease. Each passage I read bring me to an even closer understanding of what many of my clients experience on a daily basis.
I have always admired the mindfulness practices of the clients I have who live with Parkinson's Disease. We hear all this talk of "living in the moment" and "be where you are"....but I think that until we are truly not able to move from a chair, or are "frozen" in a position for mintues to hours, or are frustrated by muscular weakeness, prohibiting us from doing the dishes, folding laundry, or even driving, can we truly understand what living in the moment is. What a beautiful example of human strength, fortitude, determination and mindfulness. I am constantly learning and so proud to be in a position to provide some kind of relief and compassion to this very special group of people. Thank you for this opportunity...
I encourage you all to read this book. All proceeds are donated to the Michael J. Fox Foundation for Parkinson's Research.